The Battle

The Battle

It has been about three weeks since my last post so I figured I at least owe you an update. 

It’s after 3am. I just opened my first Heineken. Did some stretching and a little yoga while listening to Dharampal. My head hurts and I should be working on my paper about the Indian uprising but I am tired of being on the computer. So, what do I do? I migrate to the couch with my dog and my Wonder Woman snuggie because I feel like I need to write. So now, I’m just on a tiny computer. 

  
Fibromyalgia turns everything into a battle. The pain, nausea and fatigue turn everything into a chore. When I first got the diagnosis, I was relieved because I thought I would be able to form a successful treatment plan. I haven’t. I’ve improved. I think. I could just be coping better. I really don’t know. I do feel better now that I am treating it naturally and no longer taking Lyrica or Gabapentin but I don’t feel like I’ve made much more progress than that. 

My hormones are more under control and that helps too but even that isn’t resolved. 

I’ll be having oral surgery next week and I am really hoping that it’ll relieve some of this head pain. Otherwise, I’m going to have to break down and go to a neurologist but I know they’re just going to want an MRI. I can’t afford fibromyalgia or whatever else might be plaguing me. 

Sometimes, I feel good about the progress I’ve made and other times I feel completely hopeless about my health. Usually, both in the same day. Living with fibromyalgia really is like being on a roller coaster. One minute I’m up and feeling good, positive and happy. The next minute, I’m crying in pain and feeling useless. 

On top of that, it’s sent me on this path of self discovery and all that (I really wanted to call it bullshit). I’ve been atheist most of my life so this new need for spiritual belonging just makes me feel more lost than ever. I know I’m not Christian. I identify a lot with Pagean and Buddhist beliefs. I meditate and I’m drawn to certain crystals. I love my chakra stones but I still don’t know exactly where I fit in. I’ve always thought Hinduism was fascinating but deciphering between all the deities gets confusing and I eat beef. Something else I feel guilty about. I try to buy eggs from happy chickens and organic grass fed meats but I’m still consuming something that was alive. I feel guilty when I accidentally step on a snail so how can I continue to eat bacon? 

I don’t feel compelled to follow any religion wholeheartedly. 

I spent most of my younger years trying to just block out all the negativity. I ignored all the world’s issues as well as my own. Compassion was painful. It still is but I’ve decided I can’t hide anymore. It doesn’t work anyway. 

 
Sounds easy enough… but what exactly is the divine power?

“Be the change you want to see in the world.” 

-Gandhi

Well, that’s a lot of fucking pressure! Especially, when it doesn’t seem like most other people are trying to do the same. Acknowledging the world’s pain and trying to do my part to change it is challenging to say the least. 

I don’t know what to do or believe and my head hurts. 

  

When you don’t know what else to do, stay sexy Spoonies! 

Oh, these are not my images. I was lazy and they were already on my phone because I liked them. I will credit Google. 😋

UPDATE: I Took a religion test and so I just thought I’d share with you my results (this photo is mine, of course). 

  

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TBT: Before Fibromyalgia

TBT: Before Fibromyalgia

I stumbled upon that picture of my cat from four years ago. Her indoor kitty life has been rather uneventful but my life has been turned upside down between then and now. 

  
About a year after this sweet little kitten came into my life, I was diagnosed with fibromyalgia. I was already in the process of trying to improve my life. Time to grow up, I thought. So in my early 20s, I quit partying all the time and started doing yoga and eating healthy. I shed 80 pounds (half I believe due to gastroperesis, half due to hard work and self discipline). I was running a couple of miles at least a few times a week. I was so happy, healthy and in love. 

I am happy, healthy and just as much in love now but learning to be positive despite chronic illness has been a challenge. There are still days that I don’t feel happy and healthy at all. I’ve changed so much, friends from just four years ago wouldn’t recognize me based on looks or personality. 

I was an angry youth. Well, sad. Anger keeps you from crying and I pushed people away so I wouldn’t be vulnerable. I was downright mean. I thought I was protecting myself but really, I just caused a lot of pain. Pain for myself as well as the people around me. The world seemed like such a harsh and cruel place. I didn’t know yet that I was an HSP so I smothered my feelings any way I could but nothing could truly soothe my heartache. 

  
I read Atheist Yoga. That’s where I started to evolve into the person I am today. I didn’t expect yoga would lead to meditation. Now, I would consider myself spiritual after identifying as an atheist most of my life. 

The first year after my fibromyalgia diagnosis was pretty rough. I’d been in a couple car accidents. I believe that plus the piiriformis syndrome are what triggered the fibromyalgia. I didn’t even know what fibromyalgia was and I thought that Cymbalta commercial was stupid. “Depression hurts, Cymbalta can help.” So, I felt like I deserved it for being a bitch. You really can’t help thinking thoughts like that, at least at first, when you can’t get out of bed and you don’t understand why you’re in such excruciating pain. 

Such pain changes the way you think. It’s inevitable. I don’t think that’s such a bad thing. I’m more compassionate and understanding towards people. I hated posts like this when I was first diagnosed. I was so bitter. But now, I actually like who I am. I was trying to better myself before I became chronically ill but my spiritual side was dead. I felt abandoned by the Christian God. I felt let down by society. So, in my pain, I did not turn to God for comfort. It just kinda crept up on me and I slowly and unknowingly accepted it. 

  

Meditation has been the most helpful tool for pretty much everything in my life. I’m less angry and anxious. I feel connected to the universe, whatever that means. I feel like I have purpose. I feel like I can handle whatever life throws at me. I don’t feel the need to self sabotage, self destruct. Bad days are just days. 

  
I don’t hate my anxiety and my fears or my chronic illnesses. They are as much a part of me as my better qualities. It’s all part of what makes me special. It gives me a unique perspective and purpose. This is my life now and I love my life. I haven’t just changed. I’ve evolved.