This will probably be more of a rant than anything. I feel like I should also warn you that this post is full of more information than you wanted to know. Probably lost a few readers there but….
I am in so much pain. I feel like I’m the only one in my life that’s not used to all the pain and fatigue, the sleeplessness, night sweats, bad dreams. I just want to cry and cry but when I cry, other things hurt. I guess that’s just one of the benefits of an invisible illness.
My fiancé notices the cognitive issues like when I can’t navigate the grocery store or I can barely cook dinner because I can’t remember what to do next. Then, it’s burnt but he is sweet. At least I can be thankful for that.
I have not been in this much pain in quite a while. Since I found a good combination supplements and medications, the pain has been manageable, most days. Now my hormones are screwing everything up, making everything worse. I’m lucky I’m not working but I’m still starting to get behind in my math class. If I am able to concentrate, its not long before my head starts to hurt. It has taken me all day to get this post put together. I shouldn’t even be working on this. Its a waste of time compared to studying but writing is so much more therapeutic. All I want to do is sleep and I can hardly keep up with the house work.
The month started off fantastically. I was ready to start losing the weight the birth control pills caused me to gain and I’d lost over 5 pounds the first week. I was eating healthy and exercising everyday despite the increase of headaches. I don’t know what kind of headaches they are but they don’t respond to any medication or treatments. Sleep is the only escape. I only started taking birth control to help regulate my hormones. I believe I have PCOS but I was just diagnosed with PMDD. It’s probably both. I have debilitating cramps every month that shut my world down. My cycles have not always been regular but they never cease to wreck my life for a week, when they do come. As if the dysmenorrhea wasn’t enough, I’m dealing with the embarrassing hirsutism too. I don’t understand why doctors insist on trying to treat these individual symptoms instead of doing more hormone testing and looking at the big picture.
I’ve finally got the fibromyalgia (somewhat) under control and I still can’t function half the time because my hormones are all screwed up. I bleed twice as long as I should and the imbalance is making my fibro flare half the month! My hips are on fire! My spine feels like it was ripped out and used to beat the dirt out of a thousand old rugs, then hastily glued back in. All I want to do is sleep. For the last week my daily routine only consists of doing the absolute minimum then crying myself back to sleep. Then I get up to make dinner.
My hormones are screwing with my IBS too. That’s not unusual but the shittier I feel, the less I care about what I eat so that just makes everything even worse.
See, I told you this wouldn’t be much more than a rant. It looks like it’s turning into a pretty long one too. Is is so much to want to be healthy? I just want to be healthy enough to function. I have things I’m trying to accomplish here. I need to finish school but I haven’t been able to study. My head has been bothering me a lot lately. I think that’s the birth control too. You’re not supposed to take them if you suffer from migraines. So, what am I supposed to do?
The pain is depressing. How can I dream of being a librarian if I struggle so much just to get through one semester of school? How can I ever get fit if I am too lethargic and sore to exercise? I don’t know how I will ever reach my goals with so many internal obstacles. I don’t have the energy to demand the doctors listen to me. My own body has already robbed me of my youth. Now its trying to smother my hopes and dreams too. I hate how negative I sound but that’s what the never-ending pain does. Its hard to stay faithful and push through. I am lucky to have such a good support system. My heart goes out to those that don’t. It is times like this, I am glad I am so stubborn. I will get through school even if I have to hire someone to read my text books to me. Having a clear plan and a goal in sight helps me stay focused even when my pain is high. Nothing good worth having ever came easy. That’s how the saying goes, right?
I’m not refilling the prescription again. It has been three months and they’re only making things worse. There’s got to be a better option. Anybody want to buy some ovaries? I’ll throw in my uterus for free! 😉 One treatment for PCOS (the doctors won’t admit I have it but they’re willing to treat me for it) is an IUD. This type of birth control is typically reserved for women with children but, I was told there are exceptions for women in my condition. Unfortunately, there are lots of dangerous side effects like ectopic pregnancy. I’m going to have to go back to the doctor. I need my yearly woman’s exam anyway. I hate those things. The doctor always looks at me funny when I tell her it’s painful. My cervix is high and back so they have to use the long skinny tool. They never listen and shove that short, fat thing up there with no success. Just pain. No one ever listens.
Are you ever ashamed or embarrassed about the actions or behavior you displayed when you were upset or in pain? I ate some lunch and took some meds so I am not in so much pain now. I am proof reading this post thinking, “Damn, girl! Chill out. You’re just PMSing right now but you’re gonna get this shit worked out too. You’ll live in a lighthouse one day with your wonderful husband, a myriad of rescued pets and you’ll be a librarian. You’ll get there.” Okay, thanks self. Everyone reading this thinks I’m insane now. 😉
Life with chronic illness is such a roller coaster and I feel like my hormones have thrown my coaster off the tracks! If anyone out there is suffering from hormone issues, I’d love to hear your story. Thank you for letting me rant. I feel like such a drama queen. Stay sexy, Spoonies!