Hormone Hell

Hormone Hell

This will probably be more of a rant than anything. I feel like I should also warn you that this post is full of more information than you wanted to know. Probably lost a few readers there but….

Ovarian Folicle
Ovarian Folicle
I am in so much pain. I feel like I’m the only one in my life that’s not used to all the pain and fatigue, the sleeplessness, night sweats, bad dreams. I just want to cry and cry but when I cry, other things hurt. I guess that’s just one of the benefits of an invisible illness.

My fiancé notices the cognitive issues like when I can’t navigate the grocery store or I can barely cook dinner because I can’t remember what to do next. Then, it’s burnt but he is sweet. At least I can be thankful for that.

I have not been in this much pain in quite a while. Since I found a good combination supplements and medications, the pain has been manageable, most days.  Now my hormones are screwing everything up, making everything worse. I’m lucky I’m not working but I’m still starting to get behind in my math class. If I am able to concentrate, its not long before my head starts to hurt. It has taken me all day to get this post put together. I shouldn’t even be working on this. Its a waste of time compared to studying but writing is so much more therapeutic. All I want to do is sleep and I can hardly keep up with the house work.

Studying has been a real challenge, lately.
Studying has been a real challenge, lately.
The month started off fantastically. I was ready to start losing the weight the birth control pills caused me to gain and I’d lost over 5 pounds the first week. I was eating healthy and exercising everyday despite the increase of headaches. I don’t know what kind of headaches they are but they don’t respond to any medication or treatments. Sleep is the only escape. I only started taking birth control to help regulate my hormones. I believe I have PCOS but I was just diagnosed with PMDD. It’s probably both. I have debilitating cramps every month that shut my world down. My cycles have not always been regular but they never cease to wreck my life for a week, when they do come. As if the dysmenorrhea wasn’t enough, I’m dealing with the embarrassing hirsutism too. I don’t understand why doctors insist on trying to treat these individual symptoms instead of doing more hormone testing and looking at the big picture.

I’ve finally got the fibromyalgia (somewhat) under control and I still can’t function half the time because my hormones are all screwed up. I bleed twice as long as I should and the imbalance is making my fibro flare half the month! My hips are on fire! My spine feels like it was ripped out and used to beat the dirt out of a thousand old rugs, then hastily glued back in. All I want to do is sleep. For the last week my daily routine only consists of doing the absolute minimum then crying myself back to sleep. Then I get up to make dinner.

Sleep is the only thing I have the energy for.
Sleep is the only thing I have the energy for.
My hormones are screwing with my IBS too. That’s not unusual but the shittier I feel, the less I care about what I eat so that just makes everything even worse.

See, I told you this wouldn’t be much more than a rant. It looks like it’s turning into a pretty long one too. Is is so much to want to be healthy? I just want to be healthy enough to function. I have things I’m trying to accomplish here. I need to finish school but I haven’t been able to study. My head has been bothering me a lot lately. I think that’s the birth control too. You’re not supposed to take them if you suffer from migraines. So, what am I supposed to do?

The pain is depressing. How can I dream of being a librarian if I struggle so much just to get through one semester of school? How can I ever get fit if I am too lethargic and sore to exercise? I don’t know how I will ever reach my goals with so many internal obstacles. I don’t have the energy to demand the doctors listen to me. My own body has already robbed me of my youth. Now its trying to smother my hopes and dreams too. I hate how negative I sound but that’s what the never-ending pain does. Its hard to stay faithful and push through. I am lucky to have such a good support system. My heart goes out to those that don’t. It is times like this, I am glad I am so stubborn. I will get through school even if I have to hire someone to read my text books to me. Having a clear plan and a goal in sight helps me stay focused even when my pain is high. Nothing good worth having ever came easy. That’s how the saying goes, right?

The Pills from Hell
The Pills from Hell
I’m not refilling the prescription again. It has been three months and they’re only making things worse. There’s got to be a better option. Anybody want to buy some ovaries? I’ll throw in my uterus for free! 😉 One treatment for PCOS (the doctors won’t admit I have it but they’re willing to treat me for it) is an IUD. This type of birth control is typically reserved for women with children but, I was told there are exceptions for women in my condition. Unfortunately, there are lots of dangerous side effects like ectopic pregnancy. I’m going to have to go back to the doctor. I need my yearly woman’s exam anyway. I hate those things. The doctor always looks at me funny when I tell her it’s painful. My cervix is high and back so they have to use the long skinny tool. They never listen and shove that short, fat thing up there with no success. Just pain. No one ever listens.

Are you ever ashamed or embarrassed about the actions or behavior you displayed when you were upset or in pain? I ate some lunch and took some meds so I am not in so much pain now. I am proof reading this post thinking, “Damn, girl! Chill out. You’re just PMSing right now but you’re gonna get this shit worked out too. You’ll live in a lighthouse one day with your wonderful husband, a myriad of rescued pets and you’ll be a librarian. You’ll get there.” Okay, thanks self. Everyone reading this thinks I’m insane now. 😉

Life with chronic illness is such a roller coaster and I feel like my hormones have thrown my coaster off the tracks!  If anyone out there is suffering from hormone issues, I’d love to hear your story. Thank you for letting me rant. I feel like such a drama queen. Stay sexy, Spoonies!

Spoonie Dating

Spoonie Dating

I know how scary it can be to put yourself out there but we can’t let our chronic illnesses, anxiety or whatever else keep us from living life to the absolute fullest. You deserve to have someone in your life that really cares for you and wants to see you happy.

I’ve been compiling a list of spoonie friendly dating sites and I’ve discovered a few friend making sites as well. I am lucky enough to have an amazing partner but I could always use more friends!

Spoonie Dating Tips-

Most of these will probably sound cliche but they’re important, none the less.

  • Let’s start with the biggest cliche and just get it out of the way. Be yourself. Yep, I said it. I know. I wanted to place emphasis here because sometimes, with chronic illness, we feel like we don’t even know ourselves. I know I’m not the same person I was before I was struck with all my lovely ailments. So, it’s important not to hide your disabilities and your anxieties. You are wonderful. If your date can’t handle it, you want to find out as soon as possible.
  • Get used to rejection. It’s nothing personal, really. Some people just aren’t willing to take the time to get to know you. They might just be looking for a booty call. If that’s all you’re looking for, great! But, if you want more, don’t settle for someone who isn’t willing to put in the quality time.
  • If they want to spend time with you, they’ll find a way! No matter how busy either of you are and despite any limitations, if you meet someone genuinely interested in you, they will do all they can to find a way to spend time with you.
  • You are worthy! Remember that and don’t settle for an abusive relationship just because you are lonely. There is someone out there waiting to treat you like the Queen (or King) you truly are.
  • Leave the past behind you. It’s hard, maybe impossible to build a healthy relationship if you are always carrying around old baggage or worrying that your new partner is going to cheat on you, leave you or tell you you’re not good enough. You are more than good enough. Never forget that. Dwelling on the past won’t help your future.
  • Relax. First date, blind date, reconnected on Facebook after 20 years, whatever, just RELAX. Have a good time. Don’t worry about getting asked on a second date or the goodnight kiss. Play your heart out at mini golf, cry during the movie. If your date sees you having a genuinely good time, they’ll relax too and everyone will have more fun even if you don’t connect on a romantic level.
  • Trust yourself. If something doesn’t feel right, don’t feel bad for canceling or going home early. You are not obligated to do anything. Who cares if you seem a little rude? You have to take care of yourself first.
  • Be honest. Be upfront about your condition and your illnesses. You don’t have to pull out your medical records or tell your whole life story on the first date but ensure you aren’t pushing your boundaries too far. If you need your cane, take it. You are still rocking that dress!
  • A relationship is not like a home improvement project. You have to accept the person for who they are and the way they are and they must show you the same respect. You can’t paint over their flaws and polish their rough edges. You must embrace them because that’s what makes them a unique individual. Too unique for you? Be courteous and let them go. There is someone more fitting for you out there.
  • Compromise. You may have to make compromises to make the relationship work but never compromise your values. Compromise on dinner not your stance on abortion or whatever.

I know you know all this but the dating world can be intimidating at first. It’s important to stay true to yourself if you want to find someone you can be truly happy with.

Spoonie Dating Sites-

  • Dating 4 Disabled “Dating For Disabled is an online dating service for people with disabilities. We are a community where disabled singles can find love & friendship. Dating4Disabled is the number one disabled dating site, and registration is one hundred percent free!”
  • Disabled PassionsA 100% FREE online dating & social networking community specifically for singles with a disability. Meeting new people can sometimes be more difficult when you are dealing with a disability. Whether you are interested in dating, making new friends, or more, Disabled Passions is here for you. Use the Disability Groups option to find others dealing with Arthritis, Cancer, Cerebral Palsy, Depression, Diabetes Type 1, Diabetes Type 2, Mobility Issues, Muscular Dystrophy, Spinal Cord Injury or any of a number of other issues. Sign up now to enjoy free chat, message boards and email.
  • Soulful Encounters “SoulfulEncounters.com works with various disabled people and organizations to connect those who are physically and medically disabled and provide support, friendship, and a love filled social networking community. This is your opportunity for a brighter and richer life. Join SoulfulEncounters.com now – it’s free.”
  • Christian Disabled Dating “Being Disabled Doesn’t Mean You Have to Give up on Love. Create Your FREE Profile Today and Start Meeting Other Disabled Christian Singles in Your Local Area.”
  • Disability Match “Find genuine fun and intimacy with disabled singles. Specialist created this site to help people like you meet single adult men and women who share your disability, condition or life challenge within a friendly vibrant disabled community.”
  • Disability Dating “Disabiltydating.com is a free disabled dating site aimed at playing disabled cupid to people with disabilities who are seeking fun, friendship, love, romance and dating online. We aim to enable love, dating, friendship and romance by matchmaking in a safe, fun, online dating environment.”
  • Meet Disabled Singles “We’ve quickly become the most popular matchmaking agency when it comes to helping handicapable people. Spend a couple of minutes and let us be your cupid that helps you find new friends, lasting love or possibly even marriage. We can’t guarantee that you’ll find your bride, but we can guarantee that you’ll have your chance to get in touch with people looking to improve their life by finding love. Our members are united and ready to show you that your love life doesn’t have to suffer because of your disability. Create your account today for free, build your profile and start chatting with other members instantly.”
  • No Longer Lonely “We are a welcoming community that understands the trials and pitfalls of managing a mental illness. Find friends or seek romantic relationships knowing that everyone on this site has some form of mental illness.”

Friend Making Sites-

  • Girlfriend Social “Girlfriend Social is website that connects women with new female friendships. This website is for Ladies only, who just like you, are looking to make platonic women friendships. Inside women can make new friends with fabulous ladies in a safe and friendly environment.”
  • Make Friends Online “Whether you’re looking for a free great online dating agency or a place to hang out and chat with a few friends, you’ll find everything you need at MakeFriendsOnline. Millions of people from around the world are looking to meet other singles on dating websites. It’s never been easier to meet other singles on your terms, when you want and with who you want. MakeFriendsOnline.com has over 1,5 mln register members and is one of the largest online dating sites.”
  • Not 4 Dating “Not4Dating.com is a totally new way to expand your social network. We’re here to help you meet platonic friends online and then connect in real life.”
  • Disabled United “A great way to interact with other like minded people, share your views, information, advice and interests.”

Put your-sexy-selves out there, Spoonies! Have fun and stay safe!